A Sentence Can Change Your Life

Brett Favre recently revealed a Parkinson’s diagnosis during Congressional testimony.

Four words that change your life: “you have Parkinson’s Disease.” 

Football great Brett Favre heard those four words recently. In Favre’s case, he links his diagnosis to the multitude of concussions he suffered during a long and storied NFL career. There’s a price to pay for glory. A price to pay for the riches–and the hits–he received.  

A day before Favre’s disclosure during a Congressional hearing, a report was released that found that a third of former professional football players believe they have chronic traumatic encephalopathy (CTE) , a degenerative brain disease that cannot be diagnosed in living people.  

According to CNN, findings from the Boston University CTE Center suggest that playing football might increase the risk of developing Parkinson’s disease. 

 

Using data from a large online survey sponsored by the Michael J. Fox Foundation, researchers found that participants who had a history of playing organized tackle football were 61% more likely to report a Parkinson’s disease diagnosis or “parkinsonism”, an umbrella term for symptoms like tremors and rigidity that cause movement problems, compared with those who played other organized sports. 

 

The report, published in the medical journal JAMA Network Open, also found that participants who played football at higher levels — professionally or in college — were nearly three times as likely to have Parkinson’s or parkinsonism compared with those who played at the youth or high school levels. 

But you don’t have to be a football player to get Parkinson’s. I know. Parkinson’s has touched my family and ever since we heard those four words our lives have been forever altered.  

I wake up thinking about Parkinson’s and I go to sleep thinking about Parkinson’s. 

Don’t get me wrong, my family and I are fortunate and have a wonderful life. Those four words will not get in the way of being grateful for all that we’ve been given and all that we’ve worked for. 

But those four words–and it could be a variation, ”you have breast cancer” or “you have heart disease”—change things. For me personally, “you have Covid and pneumonia” (5 words) changed my life –and nearly took my life–in 2020.  

Time becomes more precious. Doctor’s visits are no longer routine, long term plans are no longer as certain. 

Serious diagnoses have a way of focusing the mind. They reorder priorities, they cannot be ignored. 

Still, I’ve learned that mindset is important. 

There’s a quote that I think about often and want to share. I’ve found it helpful, and I hope you do too. 

An entire sea of water can’t sink a ship unless it gets inside the ship. Similarly, the negativity of the world can’t put you down unless you allow it to get inside you”- Goi Nasu 

We try not to let the water get inside us. But sometimes the boat springs a leak. Sometimes we “go there” and that can make for some dark moments. We just can’t stay there.  

We have to cling to hope and when hope fades we always have faith.  

The Cafe On Main

My play “The Cafe on Main” was performed on stage yesterday before a sold-out house at the magnificent Delray Beach Playhouse.

Words cannot describe the feeling of sitting in an audience and watching talented actors bring your words and vision to life. Under the outstanding direction of Marianne Regan, the cast crushed it. They are so talented, so caring, and so generous. I’m at a loss to describe the feeling other than to say I’ve been bitten by the drama bug and I want to write more stories for the stage.

Writing can be a lonely exercise. You sit in front of a blank screen and struggle to make sense of the world. Then you hit send and have no idea how your words are received. I’m thankful for those of you who share your feedback about this blog with me; your insights shape me but I don’t see your faces, I can’t tell if my words are landing.

But getting that feedback in real time is a whole other experience. Watching a director and actors add to your vision and make it better than you could imagine is magical.

I’m grateful to the Delray Beach Playhouse for giving new playwrights an opportunity to learn, an opportunity to shine. They have created a safe place for creativity to blossom and I can honestly say the experience has changed my life. I’ve spoken to a few of my fellow playwrights and they share that gratitude. The Delray Beach Playhouse is a gem. The talent here is off the charts–I was just blown away by the acting, direction and staging of these new plays. So was the audience—whew!

I have a few ideas for future works cooking in my brain. It’s good to know that my local playhouse appreciates dreamers like me. My heart is full.

 

Ingenuity in Crisis

There’s a little bit of Edison in all of us.

 

“The value of an idea, lies in the using of it.” -Thomas Edison.

There’s no amount of perfume that you can put on this pandemic to make it smell good.
So I won’t try.
This stinks.
It’s scary, surreal and tragic.
But….
But I’m heartened somewhat by some of the things I’m seeing and experiencing.
As I work the phones, email, Zoom and Chime I’m impressed by the ingenuity, resilience, generosity and innovation I am seeing.
People are doing all they can to make it work, to stay alive and to survive if not quite thrive.
Companies are figuring out how to work remotely, charities and arts organizations are figuring out ways to raise funds and stay relevant and schools are digging deep to find ways to educate their students.
Make no mistake, the pandemic is taking a toll and I’ve had my fair share of calls from friends worried about their businesses and jobs.
I’ve had other calls from friends concerned for their health and the health of their loved ones.
But I’ve also had a lot of conversations about life. And they’ve been good.
I think the pandemic has made us appreciate some of the simple things in life that we might take for granted.
From going to the beach and the gym to visiting local restaurants and stores, it will be a long while before we take these simple pleasures for granted once we are able to return to these places.
As for me, I miss my office mates, the kibitzing, the daily debate over where to eat lunch and the great feeling that Friday brings.
Right now, I don’t even know what day it is.
I miss movies, shows and walking the mall with my brother in law and sister in law.
I miss Saturday night.
You know date night…right now every night is date night which is cool but I’d much rather have a romantic evening at La Cigale than watch (yet) another episode of “Say Yes to the Dress.”
But I digress.
There’s a whole lot of discussion of what comes next and how things won’t return to normal.
So here’s a few general predictions.
Remote meetings are here to stay but I think as soon as it’s safe we will want to congregate again. We are social creatures and let’s face it, we miss each other.
I think the Eat Local, Shop Local ethos is also here to stay and that’s a very good thing.
There’s nothing better we can do than to support local businesses.
It’s not only good for the civic soul, it’s good for the economy as well. Buying local ensures that our money will circulate right here at home.

There will be a lasting appreciation for doctors, nurses, medical workers, restaurant staff, delivery drivers, first responders, grocery store staff, teachers and others who truly make our world go round but are rarely appreciated or compensated for their work. Let’s hope this newfound —or in some cases rediscovered —appreciation leads to meaningful policies that will make people’s  lives easier in terms of housing, health care and compensation. It may take a while but let’s get started.

There will be a lot of focus on local manufacturing, farming  and public health. Long, long overdue. Let’s build that infrastructure, let’s get after it.

Some will rediscover respect for expertise.
Some will acknowledge that Ronald Reagan’s tired old “government isn’t the solution, it’s the problem” philosophy has proven to be ridiculous.
Of course, government isn’t the answer to all problems. But good government is necessary, good government is important and let’s face it when the poop hits the fan we look to government to provide answers.
We need to improve government not destroy it. We need public service to be respected and we need to attract the best and the brightest to the field.
We humans are interesting. Once we absorb the shock, we get about the business of making things work. The best of us seek to help, educate, volunteer and innovate.
I can’t wait to see what this crisis will yield. I do believe with all my heart that it will be a different but better world.

Resilience + Intelligence=Something Special

Charles Krauthammer

Charles Krauthammer died last week.

I will miss him.

Not because we shared common views on politics—we didn’t. But because he was an intelligent and brave voice and those are rare traits in these days of belligerence, alternative facts, echo chambers and blind loyalty.

Mr. Krauthammer did not follow anyone blindly. He was conservative, but independent.

He had people he admired but his admiration was rooted in ideas and ideals and that’s a welcome approach that helps to avoid a cult of personality.

Krauthammer was in Boca Raton two years ago to keynote the annual Boca-Delray Community Event of the American Friends of Magen David Adom (Israel’s Red Cross).

I had a chance to attend but had a conflict. I’m sorry I missed it. I didn’t know his voice would be silenced so soon. At 68. Cancer is just terrible. .

There are scores of great writings from the Pulitzer Prize winning columnist, but here are two of my favorites.

“You can have the most advanced and efflorescent of cultures,” he wrote in the introduction to his memoir, “Things That Matter: Three Decades of Passions, Pastimes and Politics” (2013). “Get your politics wrong, however, and everything stands to be swept away. This is not ancient history. This is Germany 1933.”

How true, we’d be wise to listen.

 

As someone who was paralyzed while a young man in medical school, Krauthammer was an inspiration and a living lesson in resilience. He loved the Bernard Malamud book “The Natural” in which the protagonist Roy Hobbs is shot by a crazed fan which derails Hobbs’ baseball career.

 

“No one knows why Hobbs is shot,” he wrote. “It is fate, destiny, nemesis. Perhaps the dawning of knowledge, the coming of sin. Or more prosaically, the catastrophe that awaits everyone from a single false move, wrong turn, fatal encounter. Every life has such a moment. What distinguishes us is whether — and how — we ever come back.”

 

In those few beautifully written sentences, Krauthammer covers fate, human vulnerability and resilience.

It’s sad that he’s gone. It’s nice to read someone you disagree with but respect. Someone who challenges your beliefs, makes you think and makes you believe that intelligent and respectful debate is still possible.

Rest In Peace. And thank you.